Tuesday, January 24, 2012

something bright burning, still burning

One shot down, almost a year's worth of shots to go. My mom's skin is already looking gray. She says she's feeling gray, too: cold chills, headaches, weakness, pain all over. Hopefully these shots will work better than the last round - better than the shots that did nothing to keep the viruses from gnawing away at her liver. From making copies of themselves and putting their pieces together inside my mom's perfectly good cells.

For as long as I can remember, the centerpiece of my coffee table has been an outdated, 3000 page Harvard medical book. I still see that old thing lying around sometimes. The pages are swollen from being soaked and dried out so much, stained by both pepsi and water. The cover is full of cigarette burns, too, side-effects of my mom's sleeping disorders and eternally-burning Pall Malls.

 It used to by my mama's Bible- the words inside were in red and black ink. Each time she had a new symptom, she'd search the book to see what illness to diagnose herself with. Coughing, the flu, chronic bronchitis, pneumonia, discs crumbling away in her back. Red ink, in the book, meant you were having an emergency. For awhile we thought she was a bit loony, a hypochondriac at times, and maybe she should just quit smoking. But everything made sense when we learned that Hepatitis C doesn't go away like they thought it did back in the 70's.

Forty years is a long time to have living things* inside you, living things destroying you, making your immune system weak, making your liver ache. I'm sure these shots will weaken my mother as they did before, making her feel like a skin-made sack of viruses, interferon, and its side-effects; the shots will make her feel "like death," as she always says. Our messy house will depress her, make her long for a beautiful, clean log cabin with shiny wood floors.

When my mom first learned the intensity of her illness - stage 2 out of 4, I still went to church, and she told me to put her on the prayer request list every sunday. That's how I knew Hepatitis C would change our lives. And even though I didn't tell my mom this, I much prefer to place my faith in science, in these shots and potential cures and transplants, instead of the supernatural - an unreliable God who only helps some and "works in mysterious ways" for all the others.

But maybe it's true what they say, that prayer doesn't change God, but the people who pray. Or in this case, the person being prayed for. Even if my mom only believes in a God sometimes, it must help to know that strangers are out in the world requesting that God somehow make things different for her.

 I don't know about God or how prayers work anymore, but I still have my faith in science. I know that if anyone can heal the sick, it's the researchers who spend hours and hours in the lab recording the nature of the universe by looking through the lens of a microscope. This is going to be a long year, but I still have hope. My mom still has hope, too, and so do the researchers who are wondering how well this  treatment will work.

Thankfully,  I feel she's in good hands, and I take comfort in remembering that even when she feels like death, possibly even like dying, there will be "something bright burning, still burning" behind all the interferon and cirrhosis. There will be my mother and her strong, resilient spirit burning. And more than  likely, she will not be without her her eternally-burning cigarettes.






*Though some say they aren't living, that viruses straddle the definition of life.

Monday, January 23, 2012

"It does not suffice for you to say I am a sweet girl
Or to say you hate to see me sad because of you
It does not suffice to merely lie beside each other
As those who love each other do

I picture you rising up in the morning
Stretching out on your boundless bed
Beating a clear path to the shower
Scouring yourself red

The tap of hangers swaying in the closet
Unburdened hooks and empty drawers
And everywhere I tried to love you
Is yours again and only yours"

Joanna Newsom

Saturday, January 21, 2012

love in the time of burping contests!

The other day a friend asked what my least favorite organ is and although I felt I was betraying myself to dislike any of my organs (they do a good job), the choice is easy. My least favorite organ is the stomach - no contest there, and I hate the whole digestive tract. I hate the sounds it makes, the run-to-the-restroom consequences when something inside goes wrong, the burps, the gulps, and the sound of people eating.

I know the digestive tract is necessary. I know that every person has one - though some digestive tracts are missing parts and some are noisier than others. I know food is good, and I love eating. But all the internal devices and chemicals involved with processing that food are just so repulsive to me. And this is all irrational, I know, but irrationality hardly matters when someone coughs near me and I immediately pray they aren't going to be sick.

With all that in mind - although it may be silly, I like to think my ability to tolerate the sounds of another person eating and digesting is positively correlated with how much I love them. There are exceptions to this theory, of course. Sometimes people are just quiet eaters and Hallie, my very best friend, has never burped before. But it's hard to deny that the situation is so much worse when someone you don't love is smacking their food, burping the alphabet, or telling you they might be sick.

It's strange how when you love someone, you learn to love everything about them - even the sounds their body makes as they eat food. You can share meals with that person, say "okay" without feeling strange when they say they're going to use the restroom, and know what to do when their belly acts funny. I know people often talk about the larger side-effects of love: the sacrifices, the weddings, the tears, the "based on a true story" Lifetime movies. But for me, although it may still be silly, the ability to be around a digestive system other than my own will always be a sure sign that - in the words of Don Williams, "it must be love, oh, it must be love."

The freedom to share food isn't all you become attached to, though. With time, you feel connected to their favorite songs, their t-shirt collection, the pictures of you together, all your memories with them. And you feel connected to the person you love as a whole - to them being greater than the sum of their parts. You learn how to know what they feel without them saying so. If they love you any less or more, you can tell from microscopic details in the way they look at you or speak to you.

And then sometimes something horrible happens. And whenever something horrible happens, it's hard to stop seeing love as terminal and useless. Once you get used to someone - their kisses, sneezes, hiccups, bellyaches, voices, laughter, eyes, smile and even their burps - once you love all those things about a person, it's hard to see the point in starting over new. You'd have to learn the meaning in another person's facial expressions, figure out how to know what they're feeling by the way they move. And what if you couldn't love another person so much? What if you couldn't bear the sound of a new person's hiccups, or what if you never guessed their feelings right?

Eventually, though, love will seem worthwhile. We'll all get lonely enough to want to worry with it again, and it's like Alvy Singer said in Annie Hall - we keep going through relationships despite their absurdity because most of us, uh, we need the eggs. I'm trying to keep this in mind right now. Even if something horrible happens, and even if I tell myself I'll never love again because love is plum stupid, I'm sure it'll happen. I'm sure I'll need the eggs, and the presence of another - digestive tract and all - again.




(Sorry for my incorrect usage of plural pronouns and perpetual switching from first to second person.)
"Even losing you (the joking voice,
a gesture I love) I shan't have lied. It's evident
the art of losing's not too hard to master
though it may look like (Write it!) a disaster."

Friday, January 6, 2012

2011 meant


Graduating high school, being sad, moving on 
falling in love with the brain 
falling in love with science 
falling in love with the human body and all its organs and nerves and complicated machinery 
deciding at the last minute to be a psychology major instead of an english major 
watching Mary, Paul, and Arthur grow into adult cats  
applying to colleges, deciding on Salem, being happy with that decision 
living with my best friend
 failing at volunteering in the psych ward 
hours and hours and hours of studying for physiology 
celebrating christmas in the city and acting insane 
becoming ridiculously obsessed with politics 
Young Democrats
being better friends with Audry and Jake 
missing Shacana and Lolo and Liz every day 
barely surviving exam week 
walks downtown to coffee shops with new friends 
a lot of love and arguments and wondering why people I like are so far away 
late night flakey conversations with Hallie while she tries to avoid waking up our neighbors 
still finding the life of a truck driver appealing 
hating the world’s obsession with Angry Birds and James Patterson
having a big sister, Gabi, who I love dearly 
nearly getting my nose pierced way too many times 
always chickening out 
trips to my old school to reunite with people I still love 
finding people who love the brain as much as I do 
making dean’s list at Salem 
my mom’s new medicine finally being available 
learning how to wrap a towel around my head 
becoming a feminist 
kicking ass at arcade basketball games 
surviving hurricane Irene 
trips to Krankies with Sara, watching Twin Peaks with Sara 
spending a week in Indianapolis 
a lot of greyhound trips 
getting my first paying job in a biology lab 
getting an internship at the medical center 
a lot of cigarette smoke 
a lot of Taco Bell 
a lot of baking, door decorating, and ordering pizza 
still having that soda pop addiction 
reading 56 books 
carving the most wonderful pumpkin with Taylor 
taking a whole class on human memory 
trips to the library on days class was cancelled 
sleeping on the floor, taking down our bunk beds, sleeping in a bed again 
spending hours looking at graduate schools, realizing I have to start applying in less than a year, feeling terrified 
nearly making it through Eric Kandel’s autobiography 
bonding with my little nephews on a trip to the ocean, arguing with everyone else 
falling in love with hush puppies and pinto beans 
learning that honey bees have emotions and that I will always be horrible at math 
spending christmas with one of my very best friends 
buying way more books than I read 
having (what seemed like) buckets of blood drawn 
always being healthy in the end 
falling in love with more local music
falling more in love with NC 
missing West Virginia more than anything 
wishing it would snow 
thinking of my house as a happiness black hole 
watching Community, Parks and Rec, and Trauma: Life in the ER 
appreciating the holidays way more in college 
wanting to have 4 billion babies but thankfully refraining 
declaring Heat my favorite basketball team   
opening a bank account 
getting my permit  
wondering why people stay here, wondering why I stay here, realizing that I stay here because I like it here and people keep me here